I’ve been reading a lot of twitter posts (I refuse to say it… you know, tw*et) and blogs of other RSD patients and it’s heartbreaking but it made me think of what I used to be like…i’ve been looking at old emails…
Today i told my acupuncturist that when i am well i want to go to my pain drs and yell “suck it!” He said he would love to come and watch. 🙂 He is the reason I am going to get well.
I just had an EMG. I cannot describe to you the pain i am in and the barbaric test that I clearly blocked out from March. I had the electric currents and then the large needles in my muscles with electric currents.
I do not have full report yet but he did show me most of the results and told me i have nerve damage in several areas, mostly in my foot and ankles. The good news in the totally abnormal, shitty test is that i appear to be on the moderate end of damage rather than high. He said that he thinks there are some therapies he can recommend in order to help the pain in my feet. He also said that one of the readings shows that there is healing going on at L5S1. I guess L 5 is worse and the left side is worse than the right. He had to do more calculations before i get my full report but he gave me that much so i was not just wondering.
The pain is unreal and i want to jump out the window. I will probably not jump out. I left there in tears.
Note: I learned later that doctors do not traditionally put RSD patients through EMGs because it’s considered inhumane. Inhumane indeed. I went about 10 days in bed, under the covers, feeling as though i was being constantly electrocuted before someone took me seriously and gave me bilateral nerve blocks to stop it.