Ego, Medicine and RSD

No, this isn’t a blog bashing your doctor’s sh*tty bedside manner. It’s also not about the doctor who makes you feel like you don’t understand your own condition (even though you have a feeling you “get it” maybe more than she does). I could blog about those things. I could blog about those ad nauseam. I will spare you my past frustration. The ego I am thinking of is ours: the patient’s.

I think in RSD we can hold ourselves back. And I think ego is the culprit.

Often we won’t entertain the idea that something we are doing or not doing just might impact our health. We believe in a pill but not healthy food. We believe in ketamine but not meditation. When we’ve worked out and lost weight, then we take credit. That we do.   But in terms of a medical condition like RSD, it seems that we believe someone else has to help us and that someone has to have many degrees and awards framed on the wall. And that we need drugs and shots – lots of drugs and shots. I say this because this is where I was coming from. It feels severe so the treatment needs to be powerful.

But what if treatment doesn’t need to be powerful drugs or shots?

Do our egos stop us from doing things that have the potential to change our health simply because the treatment doesn’t seem impressively dire enough? Is a pain experience somehow less intense if you treat it with qi gong instead of nerve blocks?

If the cure for Ebola turned out to be somewhat scientifically simple, would that imply the disease was never fatal to begin with?  No, that’s insane. It seems like in the world of pain and RSD we might be thinking that the treatment method is somehow indicative of the severity of ones experience. And that we are less accepting of alternative methods perhaps because we fear a downgrade of the perception of what we are going through.

13 thoughts on “Ego, Medicine and RSD

  1. Ahh you are too kind! It’s great to hear from you! I appreciate your very kind words. Your blog is absolutely fantastic and congrats because it’s clear that i am not the only one who thinks so! It was great before but it’s clear you are meant to write and it’s just getting better and better. You are an inspiration. Keep kicking a*s! 🙂

  2. Reblogged this on aBodyofHope and commented:
    If you are being treated for any chronic illness, this is a thought provoking read.
    I would like to add that over the last 11 years, I have watched people try surgical, natural, and sometimes whacky treatments to find relief. So often, it was the most unlikely vitamin or oil that would finally cause the effect they had been searching for. That is why I really appreciate this writer’s view.

  3. Thanks for writing this, it’s a very good train of thought for those of us with chronic illness. I often (daily) find myself wondering why I refuse to do the simple things that I know could benefit me. I bash myself around mentally for it everyday, which seems to make the problem worse.

    • Ahh. Thanks for reading it and thank you so much for your comment. I know what you mean. Funny enough, i have recently been trying to acknowledge to myself regularly how difficult it is to change and talking to others about it. It really is so difficult to do in even the smallest ways. You’re definitely not alone in the struggle to make these changes.

  4. Well said, and very true. I’ve got so suspicious of meds because I’ve had so many bad reactions and with my bad back on top of everything I’m terrified of being sick. I keep trying more natural things… In my view, the pharmaceutical industry might have invented some useful meds, but I think also they force our doctors and us to be more complex in our treatments than is perhaps good for us. The meds for CRPS cause side effects, then doctors prescribe more meds to treat those side effects, and they have side effects…and so it can go on. Pain meds don’t work well with this, so I think we have to look elsewhere.

    The pharma industry can’t make big profits from selling a natural substance. They need patents on original formulae. And as our medical world seems to rely on prescription meds, we tend to follow that path. A weird disease that can’t be well controlled, like CRPS, forces us to look elsewhere!

  5. 4 limbs and spine. Opies are not the silver bullet but it’s all that helps. I’m late stage and tried all the above.

      • I’m sending you good thoughts. And absolutely when in that type of pain, I think we need painkillers. I am definitely a person who questions so welcome to my random musings. Please know I wouldn’t mean to downplay how awful that pain is.
        Feel good.

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