I developed RSD/CRPS when the bone graft from a spinal fusion began to overgrow and compress my nerves. It appears that the pain caused my sympathetic system to go into overdrive and I ended up growing an amazing amount of bone in a two month period, so much so that my neurosurgeon had to spend hours scraping bone from my nerves at L5. I am very lucky that I had an experienced neurosurgeon handling my nerves that day because I have a near-normal EMG now. And, sh*t, i can walk! Recovery from that second surgery has been painful, arduous and the best thing that’s ever happened to me. Physically, life has been hard. Emotionally, it’s never been easier.
After years of difficulty walking and high pain levels, I am now off all Western pain medicine and am constantly learning how to live with RSD in both lower legs and feet. I can walk several miles in a day. Through Eastern Medicine, eating “with purpose” and a sympathetic system stuck in the fight mode of “fight or flight,” every day I plot to cure what ails me as I continue to make RSD my b*tch.
Every RSD patient is different but our struggles are similar and we can help one another. I want to share what has helped and hurt me in the hope it can help someone out there in pain.
All data and information provided on this site is for informational purposes only. I’m not a doctor. Don’t be a moron. I make no representations as to accuracy, completeness or validity of any information on this site and will not be liable for any errors, omissions, losses, injuries, or damages arising from its display or use.