Ego, Medicine and RSD

No, this isn’t a blog bashing your doctor’s sh*tty bedside manner. It’s also not about the doctor who makes you feel like you don’t understand your own condition (even though you have a feeling you “get it” maybe more than she does). I could blog about those things. I could blog about those ad nauseam. I will spare you my past frustration. The ego I am thinking of is ours: the patient’s.

I think in RSD we can hold ourselves back. And I think ego is the culprit.

Often we won’t entertain the idea that something we are doing or not doing just might impact our health. We believe in a pill but not healthy food. We believe in ketamine but not meditation. When we’ve worked out and lost weight, then we take credit. That we do.   But in terms of a medical condition like RSD, it seems that we believe someone else has to help us and that someone has to have many degrees and awards framed on the wall. And that we need drugs and shots – lots of drugs and shots. I say this because this is where I was coming from. It feels severe so the treatment needs to be powerful.

But what if treatment doesn’t need to be powerful drugs or shots?

Do our egos stop us from doing things that have the potential to change our health simply because the treatment doesn’t seem impressively dire enough? Is a pain experience somehow less intense if you treat it with qi gong instead of nerve blocks?

If the cure for Ebola turned out to be somewhat scientifically simple, would that imply the disease was never fatal to begin with?  No, that’s insane. It seems like in the world of pain and RSD we might be thinking that the treatment method is somehow indicative of the severity of ones experience. And that we are less accepting of alternative methods perhaps because we fear a downgrade of the perception of what we are going through.

this is why I believe qi gong works for rsd

Chronic Pain May Be About Rewiring The Brain Instead Of Using Analgesics

“We now know that absolutely in acute pain, there’s some form of injury — some form of danger signal — and we can modify pain processing within the central nervous system to some extent using a drug like a morphine. But when it switches over to chronic pain, that’s when it becomes really difficult,” Hutchinson added.

When I clicked on this article and saw the date, my recent late night Art Bell youtube habits maybe jumped to a level of concern. I saw “posted 12/10/15” and instead of thinking “oh it’s from another country,” my first thought was “ooh a time traveler!”  Hahaha ahhhh oh boy.  If you ever listened to Art Bell, that oddly makes sense.

it’s expired. do i still take it?

I think whether you’re staring at (and let’s admit it, sniffing) a condiment that’s been in your fridge for eons or holding a bottle of prescription meds that’s just out of date, it seems like a fairly universal quandary:  is it safe to consume a product after the date stamp of expiration?  At least my morning half & half that’s straddling the line has a questionable smell to tip me off.   With medication, how can we be sure?

Here’s an article about this topic (link below).  The title of the story seems a tad misleading given that they say the chances of poisoning oneself are slim.  It appears that, more often than not, the drugs lose potency.  It certainly seems that one could assume a drug is not working, take more and then be faced with too much in the system kicking in simultaneously. Obviously that could get sketchy real fast.

“When in doubt, throw it out” still seems like the way to go. Or, better yet, perhaps your local police or fire station has a lock box drop off to prevent pills from getting into the wrong hands.

Hydrocodone Rescheduling

I read this and all i could think is ugh.
Each time I hear about proposed changes (and then of course the actual changes) to pain medicine qualifications, I have to say, i get upset. While I no longer require them, I certainly believe there is a need for them. If the rules aimed at getting to abusers affect even one legitimate patient and make it harder for their doctor to prescribe to them adequate pain medication, it’s just not right. It seems to me that if you make it harder for everyone, you certainly make it harder for the legit RSD patient who maybe is in a place where they do not have the pain under control. I guess this is another good reason to try alternate therapies so we are not reliant on the decisions of others. Still ugh. I hope I am wrong and that they are able to help more people who are abusing vicodin. As an RSD person, I am very sensitive to the idea that there is an effort to make things harder for someone in a lot of pain.

you know you look good when…

your landlady who hasn’t seen you in about 8 months comes to your door and exclaims “have you gained 20 pounds?!”

#f-ingcymbalta, #emilypost, #feelinglikeamillionbucks

Seriously, I have not eaten for this weight which is the most annoying thing and it’s NOT 20 pounds. Good Lord. I didn’t even get to enjoy the chub up!

Seriously i hate medications. Thankfully i only seem to gain weight from medications (ok, other than the hideously long beer bender i call “college”).  It’s been 3 months without any Cymbalta and you’d think some of this would come off right about now. Thankfully, i am reading that infrared sauna is an amazing calorie burner. Bring it on!